Thursday, September 7, 2017

My Health Issues (If your interested)

I've been saying for sometime that my heath has not been good, and I thought I'd explain what's going on if anyone wants to know. The short answer is that I have such severe allergies that I feel like I constantly have a sinus infection, and break out in a full body rash multiple times a week, and I also have a connective tissue disorder that makes my joints much looser and floppier than they should be. That sounds great (yay flexibility) until I explain that my right hip has been partially dislocating over and over for the last week and I've mainly been in bed with pillows on either side of me to hold my hips in a more healthy and comfortable alignment. Needless to say, it hurts. I had a doctor's appointment yesterday morning and showed my doctor all kinds of ways that my joints move in ways they shouldn't and got tons of blood drawn for testing. I'm 99% sure that I have something called Ehlers-Danlos Syndrome, which in the simplest explanation means that my the stuff that makes up my connective tissue isn't made properly by my body.

To help with all of this, I am going to physical therapy to help strengthen my muscles because they are doing the main work of holding my joints in place because my ligaments are to stretchy to do their job. For the allergies I am taking immunotherapy shots to try to slowly desensitize my body to the basically everything in nature ever that I'm allergic to. I got my third set of shots yesterday as well.

Now I'm going back to my bed and my pillows because sitting here is really painful on my hips and I don't want it to slip out of place again. I need a brace, but I need to see my physical therapist about that, and I don't know when I can see her next.

If anyone wants to ask a question about all the stuff I just said, feel free to leave a comment, and I should answer to the best of my ability in a day or so. I hope this cleared up anyone wondering why I'm away for so long at a time and then kind of put out a bunch of stuff at once. When I have a good few days I mod like crazy, but right now I can't stand this chair for any longer.


  1. Thank you for your well wishes. :) I don't know how well I can get in the long run. The allergies can be treated, but EDS is a lifetime struggle